I am usually an upbeat person, blogging away, looking at the positives in life and generally trying to be happy. But these last 6 weeks have been a dodgy old ride and it’s a stark reminder of what is to come.
So I started the chemo tablets 6 weeks ago, feeling very well and still planning on going back to work after the Christmas break. Very soon after starting the chemo I developed this nasty barking cough. The first couple of weeks I was prescribed 2 lots of antibiotics but still it lingered. I suffered with shortness of breath (SOB) throughout the first weeks and doing simple tasks like walking up the stairs or just putting some washing away literally took my breath away. I felt and still feel like my 31 year old body is rapidly changing into a body that I cannot adapt too. As you know I’ve got two young kids, so this shortness of breath and generally feeling like crap has not been taken well in my books.
So fast forward a few weeks,cough is still lingering, SOB is still the same and with my heart rate in the 120’s, they decided to check to see if I had a blood clot in my Pulmonary Atrtey. This is done using a Ct scan, the radiologist is specifically looking for a blood clot but because of the nature of the scan they can pick up other things. Which they bloody well did!
No blood clot for me, instead progression of my disease. This was 10 days ago. I was told then that nothing can help with my SOB because it is disease related and the hope is that the chemo would help reduced the disease and then help my breathing get back to normal. So you can imagine at this point over a month of suffering, coughing my heart up everyday and not being able to breath I’m pretty damn fed up.
So the story continues and this time another hospital visit because of an intense pain in my right rib cage area and over my liver. I’ve been given really strong painkillers that just have not been touching it, the pain was worrying me and I needed to get this checked over. The doctor on the ward told me that the results of my CT scan 10’days ago did actually show a small pleural effusion (This is fluid around the lining of the lung) and it showed lymphangitis (enlarged/inflamed lymph system in lung) and so I was started on steroids and had a repeat chest X-ray. This showed the pleural effusion worsening with it now on my left lung and taken up residence in a third of my right lung. My oxygen saturation levels haven’t been too great neither. But the risk outweighs the benefit At the moment so they won’t drain it yet!
So now you’ve listened to me go on about the shittest time I’ve had so far on this crappy cancer journey I would just like to say thank you, the support you’ve all shown me over this last 10 months has been phenomenal. Our lives are changing ten fold at the moment. It’s all very scary and the future is so bleak and unknown.
If you take nothing else from this blog, just please have a good weekend. Give your loved ones a bigger kiss, a tighter hug and appreciate LIFE as you know it.